Charlotte-based nonprofit expands in fight against pediatric cancers
Erin Santos-Primis serves as Executive Director and Founder of the Isabella Santos Foundation. | Photo via Isabella Santos Foundation.
“We’re just doing good because I feel we should,” said Erin Santos-Primis, Executive Director and Founder of the Isabella Santos Foundation. The Charlotte-based nonprofit is at the forefront of funding research for rare pediatric cancer and providing support to children and families affected by the disease.
Santos-Primis’ established ISF in 2007 in memory of her daughter, Isabella, who fought neuroblastoma. To help other families, ISF recently announced the public launch of the TORCH Initiative — an effort accelerating clinical trials and survivor programs for rare pediatric cancer heroes at children’s hospitals across North and South Carolina.
Editor’s note: The TORCH Initiative stands for Transformational Outcomes for Rare Cancer Heroes.
Partnering with Atrium Health and Levine Children’s Hospital, ISF funded clinical trials, developmental therapeutics and a top-tier MIBG therapy suite—one of 20 nationwide.
|
Photo via Isabella Santos Foundation
With a $2 million annual funding goal, TORCH will create the opportunity to partner with every children’s hospital in the Carolinas. The initiative will make it possible for hospitals to treat 10x as many patients and collaborate with cutting edge medical professionals to make lasting change.
“While we will continue to support impactful programs in Charlotte, we believe our reach can be greater by serving thousands of children across the Carolinas battling rare cancers,” said Santos-Primis.
Since 2007, ISF has raised over $14 million to expand research and treatment and support affected families.
|
Photo via Isabella Santos Foundation
Ways to donate: Looking to contribute to ISF? The 2nd Annual ISF Golf for a Cure will be held at Firethorne Country Club in Marvin, North Carolina on Monday, June 27. Proceeds will go towards Levine’s Children’s Hospital for pediatric cancer research.
ISF is also hosting events like a brunch club, blood drives, and more.
Events
Thursday, June 13
US Open Watch Party | Thursday, June 13 | 12-8 p.m. | Sycamore Brewing & Taproom, 2151 Hawkins St., Charlotte | Cost of purchase | Catch the action on the green with friends while sipping your favorite brew.
North End Farmers Market | Thursday, June 13 | 4-8 p.m. | Camp North End, 1801 N. Graham St., Charlotte | Cost of purchase | Shop from local farmers, artisans, and small businesses.
Friday, June 14
HARDY: Quit!! Tour|Friday, June 14 | 6:45 p.m.|PNC Music Pavilion, 707 Pavilion Blvd., Charlotte | $50-$150 | Don’t “Wait in the Truck” — see the budding country artist perform live in Charlotte.
Craig Ferguson | Friday, June 14 | 7 p.m. | The Comedy Zone, 900 NC Music Factory Blvd., Charlotte | $69-$104 | Get ready for a night of laughs with the comedian and late night talk show host.
Charlotte Symphony: Jaws in Concert | Friday, June 14 | 7:30 p.m. | Belk Theatre, 130 N. Tryon St., Charlotte | $28+ | Be on the edge of your seat watching the classic film with a live orchestra performing John Williams’ legendary score.
Saturday, June 15
Brew Dash 6K, 12K, & Half Marathon| Saturday, June 15 | 8:30 a.m.-12 p.m. | US National Whitewater Center, 5000 Whitewater Center Pkwy., Charlotte | $45-$65 | Complete a 6K, 12K, or half marathon on the trails before rewarding yourself with a selection of post-race craft beers.
2nd Annual Touch-a-Truck| Saturday, June 15 | 9 a.m.- 1 p.m. | Stumptown Park, 120 S. Trade St., Matthews | Free | Bring your family to a day of seeing a collection of trucks up close.
St. Sarkis Armenian Food Festival | Saturday, June 15 | 11 a.m.- 9 p.m. | Saint Sarkis Armenian Apostolic Church, 7000 Park Rd., Charlotte | Free | Learn the Armenian culture while tasting kebabs and enjoying live music.
The City of Charlotte notified federal regulators of its intentions to buy the existing “O-Line” from Norfolk Southern. The purchase brings the Red Line one step closer to reality — connecting Uptown Charlotte to Iredell County with several stops along the way. (WBTV)
Civic
The York County sheriff’s race in the South Carolina primaries will likely head to a runoff. The current front runner Rock Hill Police deputy chief Michael Belk holds 27% of the vote. If none of the five Republican candidates get over 50% of the vote, the two leading candidates will face a runoff Tuesday, June 25.(WCNC)
Development
Wells Fargo wrapped construction on an Uptown Charlotte tower project — transforming the top floors of its location at 550 South Tryon. Roughly 62,000 sqft on the 46-48 floors will be used as office space by bank employees. (Charlotte Business Journal)
Eat
The Matador, a new Mexican restaurant in South End, is hosting a grand opening Friday, June 14. Guests can enjoy specialty tacos, a tequila menu, and brunch at the 4,300-sqft location at 1215 South Blvd. (Charlotte Business Journal)
Coming Soon
A national beach-themed restaurant and bar franchise is coming to SouthPark. Tommy Bahama Marlin Bar is scheduled to open in late 2024 at the former McCormick & Schmick’s space adjacent to SouthPark Mall. Guests can expect a casual restaurant, full-service bar, outdoor patio, and retail store. (WSOC)
Community
A new app is providing Spanish speakers with access to service requests and information. The CLT+ Español app offers the same features as the existing CLT+ app. The app can be downloaded on App Store and GooglePlay store. (WCNC)
Older Adults
Senior citizens are eligible for free fruits and veggies by participating in the Seniors Farmers Market Nutrition Program. Vouchers allow them to purchase $50 worth of produce this week at North Meck Community Farmers Market and the Uptown Farmers Market.
Try This
Hear ye! Hear ye! The Carolina Renaissance Festival is holding auditions for actors, dancers, singers, stagehands, and more. Mark your calendar for Saturday, June 15 and Saturday, June 22.
Drink
Resident Culture South End is launching its new summer coffee menu Friday, June 14. Customers can order options like Bluth Banana, Froot Loops Matcha, and a CocoCabana Latte. The coffee bar at 332 W. Bland St. is open 7 a.m.-4 p.m. seven days a week.
Sports
Learn the lingering questions heading into Carolina Panthers Mandatory Minicamp. Go beyond the scoreboard for the biggest stories on the Carolina Pantherswith Locked On’s daily, team-focused podcasts.
Outdoors
🐻 Honey? There’s a bear in the yard...
Bear sightings reported around Charlotte
North Carolina has a rising black bear population, making human encounters more likely. | Photo by Thomas Fuhrmann via Wikimedia Commons
A bear rummaging your patio may come as a surprise — but human encounters with these top predators are more common heading into summer.
On Saturday, June 8, a black bear was caught on camera strolling through a Tega Cay backyard around 7:15 a.m. Shortly after, Tega Cay Police issued a notice warning people in the area to keep a sharp eye.
The sighting in Tega Cay is one of three recorded bear sightings since Friday, May 31 near people’s homes — including Huntersville and Lake Norman.
“Mother bears have emerged from their den with their cubs, one-year-old bears are leaving their family group and roaming to find a new home,” said Colleen Olfenbuttel, a bear expect with the NC Wildlife Resources Commission. “With breeding season just around the corner, male bears are starting to travel extensively searching for mates. Also, bears are hungry after hibernation, so they are all roaming around looking for food.”
A Father’s Day gift that will ship in time for this weekend, thanks to Prime. We’re seeing pizza stones, spikeball kits, roomy travel backpacks, and quintessential “Best Dad Ever” mugs (those are always a winner, right?).
Answered
On Wednesday, we asked “How many schools did the The Rosenwald Fund help build?”
The Siloam School served as a schoolhouse, family home, and auto body shop over the years.
|
Before photo via Charlotte Museum of History | After photo by CLTtoday
When reporting on the rescue and restoration of the Siloam School, we wanted to test your local history:
It’s officially summer movie season. I’ve got my calendar marked to see “The Bikeriders,” “Horizon: An American Saga: Chapter 1,” and “A Quiet Place: Day One.”
Content marked with an * is paid advertising. Content marked with an ^ is created by our content studio. The company may also generate commission from affiliate links in the newsletter.